The National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH), and Centers for Disease Control and Prevention (CDC) recently assembled an external working group of international experts and patient advocates to develop a set of ME/CFS Common Data Elements (CDEs) for use in clinical research.  The ultimate goal is to standardize the collection, analysis, and comparison of data across the research community to address the problem of variability in ME/CFS research.  The draft version of the ME/CFS CDEs is available for public review and comment until January 31, 2018.  We encourage the ME/CFS community to take the time to review the draft CDEs and provide comments prior to the general release in February 2018. You can view the draft CDEs and more information about the project at